Closing the Generation Gap: Part 2 - Hemophilia Federation of America
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Join us in a discussion as young adults and experienced members of the community share their knowledge with each other. This discussion is intended to “close the generation gap” and provide a space for community members, both younger and wiser, to share their perspectives and experiences with their bleeding disorder. Part 1 was a great […]
<!-- wp:paragraph --> <p>Join us in a discussion as young adults and experienced members of the community share their knowledge with each other. This discussion is intended to “close the generation gap” and provide a space for community members, both younger and wiser, to share their perspectives and experiences with their bleeding disorder.</p> <!-- /wp:paragraph --> <!-- wp:paragraph --> <p>Part 1 was a great success, and we can't wait for you to join us for part 2. </p> <!-- /wp:paragraph -->
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European Haemophilia Consortium (EHC)
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Magnetic resonance imaging in boys with severe hemophilia A: Serial and end‐of‐study findings from the Canadian Hemophilia Primary Prophylaxis Study - ScienceDirect
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Working with Rare Disease Communities and Advocacy Groups
Delivery of Oligonucleotide Therapeutics: Chemical Modifications, Lipid Nanoparticles, and Extracellular Vesicles
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NORD Drives Rare Disease Progress Through Patient-Powered Data With IAMRARE™ Registry Members - National Organization for Rare Disorders
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A practical approach for adoption of a hub and spoke model for cell and gene therapies in low- and middle-income countries: framework and case studies
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Haemophilia Nature Reviews Disease Primers
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Why are haemophilia gene therapies so expensive? - Pharmaceutical Technology
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The Next Big Thing in Health Reform: Where to Start? - The American Prospect
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The Hemophilia Association of New York